Mairead-H wrote:Good luck. Steroids are my magic wand when I have a flareup!
Me too but my rheumy consultant said something strange about them when I mentioned that I had been put on a 60mg course by A&E. 'It's not a dose rheumatology would use.' So I asked what rheumatology would use and was told 7.5 mg as a max! That's interesting because I have had several attempts at getting below 20 mg and have never succeeded yet. I have tried going down in 5 and 2.5mg steps. I am now trying 1 mg steps. I am down to 18 and the top of my pelvis is a slow burning fire, if you know what I mean.
Oh and yes - the heart palpitations are disturbing aren't they, especially noticeable at night and when lying on your side? I also had terrible nightmares, although that could partly be due to the amitryptiline.
Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012)
Ulcerative Colitis (1990)